“The disabled community were held in the dark for so long. By pulling funding that has improved their quality of life and independence, we will be set back. These services are necessary to ensure that the individual’s life is enriched to the fullest extent possible.”
Over 100,000 New Yorkers with intellectual and/or developmental disabilities (I/DD) rely on Care Coordination Organizations (CCOs) every day for connections to critical, comprehensive services that support their health and wellbeing. In 2018, the federal government and New York State created and continue to make important investments in this critical care management system today. At a time when the COVID-19 crisis is significantly impacting the people of New York, CCOs are supporting thousands of local providers as they provide direct care to ensure that individuals with I/DD and their families receive the care and services they urgently need. These services make it possible for our members to live full lives and to plan for meaningful futures.
But now more than 100,000 people who are dependent on Care Coordination Organizations are at risk -- this vital safety net cannot be weakened by significant cuts during this critical time. We must raise our voices together. Now more than ever, we need these crucial CCO services to maintain the health and quality of life that all New Yorkers with intellectual and/or developmental disabilities deserve.
Care Coordination Organizations support individuals with intellectual and/or developmental disabilities through all stages of life to address all social determinants of health, including health care, employment, housing, community relationships and resources for economic stability. This includes over 70,000 individuals who live at home and depend on coordinated services, and over 36,000 individuals require 24/7 care and oversight. Our mission is to ensure that all New Yorkers with intellectual and/or developmental disabilities can continue to access services for fulfilling, meaningful, inclusive lives in our communities, especially in the face of this pandemic.